As PPI lead for the NIHR BRC Musculoskeletal theme, I am a passionate champion for public and patient involvement in research and was instrumental in including the recommendation which encourages public and patient involvement (PPI) throughout the data management lifecycle from research question to final data sharing and usage.
At the plenary, I also gave a presentation to the Citizen Science and Community Participation session on ‘Patient and Public Involvement in Research: Considerations for Citizen Science’ discussing the potential involvement of different communities in data collection and management.